MS Programs, Helpful Resources, Video's, ADA and Misc Web sites
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PRIANO'S
7618 N. Governent Way, Dalton Gardens, Idaho 208-762-9712
September 2000 my hubby got me a pool that is about 5 1/2 feet deep and 12 feet wide. Right now he has it covered, and a small water heater hooked up to it. I go into it about 3-5 times a week and just do water exercises. The water is any where from 62-72 degrees and is a bit chilly at first then you do get use to it. Remember our core temperature is high and with the cold water it brings it down. When standing in water up to your chest, you only weight a third of what you do on dry land. So you get the fitness benefits of running, hopping, twisting, and kicking without wear and tear on the joints.
Remember as we age, whether we have MS or not, our jointd don't react as well on land as they do in water. In water, you're completely buoyant; you're not working against supporting yourself.
QUICK RELAXATION
Loosen your clothing and get comfortable.
Tighten the muscles in your toes. Hold for a count of 10. Relax and enjoy the sensation of release from tension
Flex the muscles in your feet. Hold for a count of 10. Relax.
Move slowly up through your body-legs, abdomen, back, neck, face - contracting and relaxing muscles as you go.
Breathe deeply and slowly.
A FULL LIFE AGENCY
OFFICE LOCATION
Hayden Lake, Idaho
9297 N. Government Way, Suite C. PO Box 1898
208-762-9835
Toll Free and Fax: 1-877-855-5433 & Fax: 208-762-0935
A Full Life Agency, work with the approach of teaching and assisting consumers and their caregivers the importance of maintaining good personal hygiene and a clean, safe environment.
They recognize the right of every consumer to have the highest quality of in home services available.These services are much more effective when the consumer can be in their own home with friends and family nearby to provide support.
Personal Care Service provided by a licensed C.N.A. Includes skilled assistance and bathing and grooming, Meal preparation, Excercise program assistance, and transportation to medical care. Supervised by a Registered Nurse.
COOL SUIT FOR SUMMER GARDENING
A friend from Clarkston, Idaho sent me her "invention" to keeping cool while gardening. I thought all of you would be interested in it.
The got one of those Black support Vests that sell to construction workers. They have back crossed shoulder straps and she sewed the bottom of the two back panels closed to make "pockets". Then she bought two small Blue Ice Packs at the grocery store and they are the perfect fit for the pockets. Then she puts on her shorts and tank top, wide brimmed hat, garden gloves, vest with cool packs and out the door to her garden. In the past she could stay out for a hour or so and now with this cool vest she can stay out longer and do things she loves. Remember to keep the Blue Ice Packs in the freezer after and when not in use.
National Family Caregivers Association
The National Family Caregivers Association (NFCA) is a charitable organization created by and for caregivers. The NFCA provides services on the caregivers behalf in the areas of information and education, support and validation, public awareness and advocacy. It's mission is based on the belief "caregivers who choose to take charge of their lives, and see caregiving as but one of its facets, are in a position to be happier and healthier individuals. They are able to have a higher quality of life and to make a more positive contribution to the well being of their care recipient, all of which has a positive impact on society and health care costs."
For more information, log on to www.nfcacares.org or call 1-800-896-3650
to complete online membership form of which membership is FREE..
Demos Medical Publishing, Inc.
Demos Medical Publishing, Inc. is a small, independent publisher that specialities in books for the medical professional and for individuals with a variety of disabling and chronic medical conditions, primaritly neurologic in nature. Demos is particularly pleased to have an extensive list of books and a companion newsletter on Multiple Sclerosis, and to have been witness to the exciting new therapeutic developments of the past few years.
For a list of available titles, contact the order department by e-mail:
orderdept@demospub.com or call 1-800-532-8663
Shared Solutions
Shared Solutions is a free patient support program designed to help people with multiple sclerosis, their families and their caregivers confront and manage the challenges of living with Multiple Sclerosis
Every member of Shared Solutions has access to one of the most comprehensive MS management programs available, including: The Shared Solutions reimbursement staff is available to advise with any insurance questions that may arise with your provider. Our reimbursement counselors can assist you with medical assistance programs needed.
We'll be happy to supply you with brochures and other materials relating to the challenges of MS - be they physical., emotional, financial, social or employment-oriented. You can request this information at anytime at NO charge, whether or not you are currently taking Copaxone Therapy.
Call Shared Solutions by calling toll-free Monday through Friday from 8 am to 8 pm (CT) at 1-800-887-8100
NARCOMS
WHAT IS THE NARCOMS PROJECT?
NARCOMS multi-center MS stands for North Amerian Research Consortium on MS. Started in 1993 by the Consortium of Multiple Sclerosis Centers (CMSC) to facilitate research and reduce time and cost of research studies. Led by Dr. Tim Vollmer and based at Barrow Neurological Institute in Phoenix, Ariz. An MS patient registry created to help facilitate multi-center MS research "to progress in the developent of better treatments for MS and for greater understanding of the disease." The number of registry participants is over 20,000 and new participants join every day.
HOW DO I ENROLL??
People living with MS can enroll online in the NARCOMS Multiple Sclerosis Patient Registry by submitting an enrollment questionnaire. Enrollment is free and promotes MS research. Your information is kept stricly confidential. You also may request an enrollment questionnaire to be sent to you via postal mail. Call 1-602- 406-3106 or toll free 1-800-253-7884. E-mail narcoms@chw.edu
What additional information is available?
MSQuarterly is the offical publication available to members of NARCOMS.
NARCOMS registry enrollees receive the free printed version of the MSQuarterly four times a year.
MSQuarterly includes original review articles, NARCOMS news, breaking news, and clinial trials in progress and open for enrollment.
VIDEO'S
Sit n' Be Fit: Mary Ann Wilson 1-509-448-9438 or call 1-800-FightMS to get a copy and information.
- Richard Simmons: Sit Tight - A Sittin' Down Workout.May be ordered through Amazon.com
Richard Simmons: Reach for Fitness..A special Video of Ecercises for the Physically Challenged. May be ordered through Amazon.com
Yogability and You with Shelley Sidelman: VHS is 60 minutes and can order through www.yogabilityandyou.com
Yoga: For MS and Related Conditions: VHS 48 mins and order through Demos Publishing
Aqua Exercise for MS: Demonstrates an ative water workout that cools and supports the body, with exercise to reduce spasticity, build muscles, and improve posture and body alignment. VHS 20 minutes: order 1-800-235-3256 www.sprintaquaticas.com
MISC. WEB SITES:
Web site made by a son in the Bothell, Washington area for his Mom: www.ms-info@comcast.net